- Видео 158
- Просмотров 243 324
ALSNorthwest
США
Добавлен 3 июн 2011
Here are stories and highlights from ALS Northwest (formerly known as the The ALS Association Oregon and SW Washington Chapter). Our organization exists to provide free, hands-on care services programs and a community of healthcare professionals, family and friends for those living with ALS in the State of Oregon and the six counties of SW Washington.
Beers & Gears
Looking for a great cycling event this summer? Look no further than the 2024 Beers and Gears on July 13, 2024 in Mt. Angel, OR. With routes ranging from 10 mile to 77 miles, ride beautiful low traffic roads on the Willamette Vally while making a difference for people living with A.L.S. With great rest stops and a fantastic beer fest finish line party this is the cycling event for you and your family this Summer. Learn more and register at www.BeersandGears.org
Просмотров: 278
Видео
ALS 101: Clinical Trials
Просмотров 18821 день назад
This video is part of a monthly educational series geared toward anyone who wants to learn more about ALS (also known as amyotrophic lateral sclerosis). We invite you to review the basics at your own pace throughout this educational series, which is currently ongoing. In this episode, Tyler Regan (Associate Clinical Research Coordinator, Providence Brain and Spine Institute) defines clinical re...
ALS 101: An introduction to Amyotrophic Lateral Sclerosis
Просмотров 1 тыс.Месяц назад
This video is the first of a monthly educational series geared toward anyone who wants to learn more about ALS (also known as amyotrophic lateral sclerosis). We invite you to review the basics at your own pace throughout this educational series, which is currently ongoing. Tell us what you thought about this video, and any topics you'd like to see in future ALS 101 sessions: secure.alsoregon.or...
Assistive Technology: Phone & Computer Access
Просмотров 172 месяца назад
Ashley Loyning, MS, SLP, the organization's Assistive Technology Services Coordinator, presents the latest in assistive tools and apps for your phone and computer. Please note that assistive technology tools are rapidly changing and evolving. Learn more about our Augmentative Communication and Assistive Technology program: alsoregon.org/navigating-als/als-care-services/augmentative-communicatio...
2024 Walk ALS Oregon and Washington!
Просмотров 8763 месяца назад
Join ALS Northwest at one of six locations in the Pacific Northwest to support people living with (amyotrophic lateral sclerosis) ALS and contribute to ALS research! Events are in Portland OR, Vancouver WA, Bend OR, Medford OR, Salem OR and Eugene OR. Register at www.alsoregon.org/walk. Learn more about ALS Northwest: www.alsoregon.org Check out more upcoming events: www.alsoregon.org/calendar
Karen Stiles Story
Просмотров 13 тыс.7 месяцев назад
Karen Stiles of Portland, Oregon died on February 9, 2024. We share this with you all because she and her family recently shared their story with us for our winter fundraising drive. She was an incredible champion for people with ALS and the mission of the organization. Our thoughts are with Karen's family during this difficult time.
Karen Stiles Story - snippet
Просмотров 3207 месяцев назад
Karen Stiles of Portland, Oregon speaks on her ALS diagnosis. Karen died on February 9, 2024.
ALS Research Symposium 2023
Просмотров 4967 месяцев назад
Learn about the latest in ALS research with presentations from local and nationally esteemed ALS researchers and clinicians. Presented by ALS Northwest: alsnorthwest.org/
ALS Northwest 2023
Просмотров 4,3 тыс.8 месяцев назад
ALS Association Oregon and Southwest Washington Chapter is now ALS Northwest. Eradicating ALS is still our vision, and supporting our constituents locally is our mission. Read more at alsoregon.org/new-name-and-logo/
Smith Family Strong - ALS Northwest
Просмотров 4,1 тыс.8 месяцев назад
Steven Smith has been living with ALS since 2018 and his family has been with him every step of this journey.
Speech & Communication and ALS
Просмотров 47Год назад
Ashley Loyning is our Assistive Technology Services Coordinator at ALS Northwest. In this educational seminar, Ashley discusses how speaking and swallowing can be impacted by ALS and includes strategies for maintaining communication and independence. Please note that assistive technology tools are rapidly changing and evolving. Learn more about our Augmentative Communication and Assistive Techn...
Ski to Defeat ALS 2023
Просмотров 187Год назад
An exciting day of fundraising for research and services for people living with ALS on the slopes at Mt. Hood Meadows. Learn more about ALS Northwest: alsoregon.org/ Check out our year-round special events: alsoregon.org/get-involved/special-events/
ALS & Respiratory Health with Dr. Libby
Просмотров 112Год назад
Dr. Lou Libby presents on respiratory health and its significance for people living with ALS, including respiratory effects, clinical signs of respiratory muscle fatigue, and respiratory muscle testing. He also discusses options for managing respiratory fatigue. Learn more about ALS Northwest: alsoregon.org/ Find more resources for people living with ALS: alsoregon.org/navigating-als/resources/
Mary Porter on being a Ski to Defeat ALS participant
Просмотров 431Год назад
Mary Porter on being a Ski to Defeat ALS participant
Accessible Vehicle Options for People with ALS
Просмотров 120Год назад
Accessible Vehicle Options for People with ALS
Veteran's Benefits for People Living with ALS
Просмотров 3592 года назад
Veteran's Benefits for People Living with ALS
Assistive Technology & Home Automation
Просмотров 1082 года назад
Assistive Technology & Home Automation
Dr. Louis Libby | ALS Hope Award Presentation
Просмотров 542 года назад
Dr. Louis Libby | ALS Hope Award Presentation
Elizabeth Fassler | Living with ALS
Просмотров 2,1 тыс.2 года назад
Elizabeth Fassler | Living with ALS
Maria Fraga-Perez | Living with ALS
Просмотров 2,4 тыс.2 года назад
Maria Fraga-Perez | Living with ALS
AMX0035 Clinical Development Program Updates | ALS Research Week 2021
Просмотров 5902 года назад
AMX0035 Clinical Development Program Updates | ALS Research Week 2021
Dr. Lauren Gittings and Dr. Nishal Shah | ALS Research Week 2021
Просмотров 972 года назад
Dr. Lauren Gittings and Dr. Nishal Shah | ALS Research Week 2021
Local Clinical Trial Updates | ALS Research Week 2021
Просмотров 1072 года назад
Local Clinical Trial Updates | ALS Research Week 2021
Brain Computer Interface for Communication | ALS Research Week 2021
Просмотров 2432 года назад
Brain Computer Interface for Communication | ALS Research Week 2021
Wow! What grace she shows!
i was diagnosed 4 weeks ago. i don't have anyone around like i see here i this video. she was lucky so many cared about her and miss her.
I’m so sorry and sad to hear this. Wishing you well.
So sad to hear this. Hope you’re ok. Sorry for your suffering.
Im proud to be a SMITH. Smiths dont quit.❤
A beautiful and gentle soul. 💕🙏🏻
❤
What a beautiful soul! I was diagnosed in February and felt like my whole world ended. You are such an amazing inspiration. Thank you for sharing your story.
Thanks for your comment! Please let us know if you need support - our Care Services Coordinators would be happy to connect with you. 503-238-5559 or careservices@alsnorthwest.org.
Thank you so very much for sharing Karen’s story, and I’m deeply sorry for your loss. Karen’s loving spirit reminds me of my late brother-in-law. He passed away from ALS two years ago….but his spirit; a spirit of kindness, love and Grace remains. I hope and pray for a cure for this devastating disease….for those individuals given the devastating diagnosis that their lives will be cut short…and for the family members, who now have to continue to live their lives with an emptiness in their hearts. ❤️🙏
I walked this journey 19 Years ago with my late husband he was 42 when he passed away and only lived 20 months. Horrible, horrible disease, it doesn't seem like the care has gone too far. Sounds keep sending me the videos. I will watch them. I will also pray for the people that are diagnosed with ALS and their partners.
Thank you for sharing your story. 🧡
ALS Northwest has been a lifeline for me - shoutout to Mary R.!
We love Mary, and are so glad she's been a support to you!
What a disease.....unbelievable
Lovely lady and such and motivator! Thank you!
Yes Dear One! Keeping busy and LIVE! ❤
Please help me I'm suffering ALS disses one year ago I'm 35 year old please help me please
The ALS Association did nothing for my father except expect us to drive from Louisville to Lexington for them to look at him. He was a veteran and the VA didn’t do much either. My sister, our mother and I did around the clock care for him for over 2 years. I could remove his trachea tube, clean it and have it back in before he drew another breath. He had the oxygen breathing machine, catheter, feeding tube. When he passed after being flat on his back for over two years, he had a tiny sore behind right ear. No bed sores any where else.
Sad. God bless you.
You're a legend xxx
I want to appreciate Dr Madida on RUclips for treating my Dad of his Multiple sclerosis with their natural meds🌿🌿🌿...
Happy 34th birthday Angela!! Wishing I could spend it with you but I'm forever grateful to have these snippets when I miss you most.
I'm going through this too and you express my feelings exactly. ❤❤❤
Beautiful
Karen, you are a very wise person who has many of the thoughts I have had. Only difference is you are much more articulate than I am. Keep living life and know that I will praying for yours to have a profound impact on your family and those who watch this. Thank God for the ALS Association. Our lives are better because of them.
Blessings to Steven and thanks to ALS Northwest ❤
We love you aunt Karen! ❤
My oldest brother had ALS he passed away 7 years ago 😢😢 I miss him
All thanks to DR ALAHO OLU on RUclips Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.🌱🌱🌱
All thanks to DR ALAHO OLU on RUclips Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.😊❤
All thanks to DR ALAHO OLU on RUclips Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.🎉
All thanks to DR ALAHO OLU on RUclips Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.🎉
Love family always God bless you all💕💕💕
What a horrible diagnosis yet what a huge blessing to have so many people love you. Love is an action and helping someone in need is an action.
I love the ALS Association (now ALS Northwest) too! Thanks to them my mom was able to live a fulfilling life after diagnosis and experience a dignified death. We couldn’t have navigated all the systems without the team at ALS Northwest 💕
It was challenging and unbearable because of how critical my health situation was. but I am grateful and happy to have ordered Dr Aluda herbal medications on RUclips which I used to cure my Al's disease...
Very interesting! I realize it's a little late to ask questions but... 26:30 in the Shuffle Speller paradigm, is this used with subjects who look to the different boxes by moving their eyes? If so, can't eye tracking be used instead? Or is this used with subjects who can't move their eyes, in which case apparently the particular flashing light next to the attended letter box appears in the EEG solely by virtue of subject attention, despite all the flashing lights impinging on the eye? That's pretty amazing!
It's a new way to cripple the entire population for less than a percentile of it's total population
You are a stunningly beautiful woman. Many prayers and much love.
RIP Nicole 😔
My father is suffering from als
Please find a cure
Help me please soliaon 🙏🙏🙏🙏🙏
Please help me soliaon
Girl!!! You are beyond amazing and an inspiration for so many!!
The worst disease ever
My father and me effected als
Pls help me😭
Als pls any more solution?
Help people with mnd,you can't even think of what they are going through
My mom would have been deceased today if not for the help of #drjuderobert who used his effective he rbal me dicine to reverse her ALS disease. All thanks to you Doctor #drjuderobert
Plz help
Plz fast madichin MND 🙏🙏
😢😢
Strong person, wonderful family!